As most of you know my sweet baby girl Lyla was born with a neural tube defect called Spina Bifida. Not familiar with Spina Bifida? Spina Bifida is the most commonly occurring complex birth defect in this country affecting over 166,000 individuals. It occurs when the spine of the baby fails to close during the first month of pregnancy, leaving a permanent opening in the spinal column. For those...
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As most of you know my sweet baby girl Lyla was born with a neural tube defect called Spina Bifida. Not familiar with Spina Bifida? Spina Bifida is the most commonly occurring complex birth defect in this country affecting over 166,000 individuals. It occurs when the spine of the baby fails to close during the first month of pregnancy, leaving a permanent opening in the spinal column. For those who are born with Spina Bifida, some face no challenges while others may live with conditions such as hydrocephalus (fluid on the brain), varying degrees of paralysis, bladder and bowel complications, learning disabilities, and latex allergy. That's just a quick summary. Most of you my dear and close friends know what we have gone thru as a family coping with this. It hasn't not always been easy. We have good days and we have bad days. But one look at the beautiful smile on Lyla's face and I instantly know she's worth it. I have been waiting for a walk like this to come to our area. There are many ways you can help. You can walk with us. You can donate money. And if you can't make it you can be a virtual walker. So there is pretty much no reason you can't participate! LOL! I need to start figuring out numbers soon so I can order shirts! Yay!!! Once again we thank you and love you for all the support of have given to us and continue to give us!!!
Copy & Paste this link to join our team or donate:
http://www.walknrollsbacfl.org/faf/search/searchTeamPart.asp?ievent=482404&lis=1&kntae482404=647E7F5BDDAD45D3869EC103B7A7630D&supId=0&team=4227339